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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible
Shelley Z. Reuter
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Description for Testing Fate: Tay-Sachs Disease and the Right to Be Responsible
Paperback. Num Pages: 288 pages. BIC Classification: JFFH; JFFJ; JFSL; MBX. Category: (G) General (US: Trade). Dimension: 217 x 140 x 18. Weight in Grams: 334.
In today's world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make responsible medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-a-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups. Tay-Sachs, an autosomal recessive disorder, is a case in point-with origins in the period of Eastern European Jewish immigration to the United States ... Read more
In today's world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make responsible medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-a-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups. Tay-Sachs, an autosomal recessive disorder, is a case in point-with origins in the period of Eastern European Jewish immigration to the United States ... Read more
Product Details
Format
Paperback
Publication date
2016
Publisher
University of Minnesota Press
Condition
New
Number of Pages
288
Place of Publication
Minnesota, United States
ISBN
9780816699964
SKU
V9780816699964
Shipping Time
Usually ships in 15 to 20 working days
Ref
99-15
About Shelley Z. Reuter
Shelley Z. Reuter is associate professor of sociology at Concordia University. She is the author of Narrating Social Order: Agoraphobia and the Politics of Classification.
Reviews for Testing Fate: Tay-Sachs Disease and the Right to Be Responsible
An engaging and carefully documented piece of scholarship. -Disability Studies Quarterly A thoughtful, rigorous contribution. -Journal of the History of Medicine A sound contribution to anthropological debates surrounding the expression of biocitizenship, and, more specifically, how the decisions surrounding genetic screening are constrained by the continuous inculcation of normative ideas of ... Read more